Gathering views on palliative care
The Scottish Government asked us to find out about people's views on palliative care.
The Scottish Government will use feedback from members of the public to complement their own research in support of developing a new Palliative Care Strategy in 2024. The strategy has 2 aims:
- Everyone in Scotland receives well-coordinated, timely and high-quality palliative care, care around death and bereavement support based on their needs and preferences, including support for families and carers.
- Scotland is a place where people and communities can come together to support each other, take action and talk openly about planning ahead, serious illness, dying, death, and bereavement.
To help inform the strategy and build on the research already carried out, throughout January and February 2024 we engaged with individuals from these 5 groups:
- people living in remote, rural and island communities with health problems that mean they would be eligible for palliative care as patients, family members or carers
- older people (with multiple health problems, long-term conditions and/or general frailty)
- parents, children, and young people
- carers, including bereaved carers
- people and families with experience of receiving specialist palliative care (such as a hospice day unit)
We engaged with between 6 and 10 people across Scotland from each of these groups through group discussions or one-to-one interviews either by phone, video or in person.
We are now analysing people's feedback and will publish a summary report later in the Spring of 2024.
If you would like more information about this project, please get in touch.
This page will be updated as the work develops.
Commissioning
Agreeing the topic with the commissioning organisation
Engagement
Asking members of the public for their views and experiences
Analysis
Analysing the feedback from members of the public, identifying themes and developing recommendations
Report published
Final report and recommendations agreed and published
Follow-up
We go back to the commissioning organisation after 6, 12 and 18 months to find out people's views have been taken on board.